RESOURCES

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VIDEOS

FASD More Common Than you Think - (PBS documentary) 

Fetal Alcohol Spectrum Disorders (FASD) occurs when a mother drinks alcohol during pregnancy. Symptoms, such as hyperactivity, impulse control and memory deficits can look like many other disorders yet treatment is very different. FASD, often referred to as the invisible disability, has flown under the radar for years. This PBS two part video series will provide an overview of this hidden disability affecting so many individuals, families and caregivers. 

Part 1 - https://youtu.be/bfbFEuK6ry8 

Part 2 - https://www.pbs.org/newshour/show/why-do-pregnant-women-get-confusing-guidance-about-alcohol


What is FASD? (4:28)

This video discusses Prenatal Alcohol Exposure (PAE) and Fetal Alcohol Spectrum Disorder (FASD). It briefly discusses how drinking alcohol while pregnant may affect the developing organs and brain of the fetus. The effect of PAE may result in irreversible brain injury resulting in a spectrum of lifelong symptoms.

https://vimeo.com/237587048


FASD #Beware (4:05)

Doctors Abiona and Mukherjee discuss the lifelong effects of Fetal Alcohol Spectrum Disorder (FASD) and the behaviors associated with FASD. This video helps to draw a greater awareness of the condition and its impact on individuals, families, care-givers and society. 

https://youtu.be/wunVDGUa8XY


Videos from the Perspective of Individuals with FASD 

The following brief videos are told from the perspective of individuals with FASD, their caretakers and experts in the field. These videos will provide the listener with first- hand knowledge of the struggles, strengths and tenacity associated with living with FASD


Adaptive functioning: (7:06) Individuals with FASD struggle with adaptive functioning which includes age-appropriate behaviors for meeting life’s daily demands and functioning safely and appropriately.  

https://youtu.be/f73Ty-efsRY 


Executive functioning: (4:59) 

Executive functioning is the ability to plan and complete a task. An individual with deficits in executive functioning will struggle with a variety of cognitive issues to include problem solving, integrating information and abstract processes such as math or understanding time. 

https://youtu.be/NdANbWlpJm4 


Social Behaviors: (2:39) 

Social etiquette and the concept of making friends can be a major challenge for children with FASD. Their lack of understanding proper social skills and boundaries can lead to loneliness and isolation. 

https://youtu.be/xtH2eFGr7Eo 


Brain development and FASD (2:17) 

Dysmaturity, a primary characteristic of FASD, is when a gap exists between the developmental age and the chronological age.

https://youtu.be/I7tndtVNs-w 


The Story of Iyal (3:49)

In this CDC video, education, advocacy, and diagnosis are highlighted as key supports to the family. Early diagnosis not only leads to interventions but to validation for the family and the ability to create external support systems. 

https://youtu.be/QuBBLEf2u7I  


5 Unhelpful Responses We Have to Escalated Kids and Adults (7:41) 

Frustration builds easily in those affected by FASD. As a caregiver, it can be difficult to know how to respond to someone who is escalating and aiming their anger at you. In this video, FASD expert, Nate Sheets discusses how to have a plan to prepare for escalation while remaining calm throughout the individual’s meltdown. 

https://www.youtube.com/watch?v=e7NgvDH_w28&feature=youtu.be 


Using a "Stop & Think Plan " to Help with Processing (10:13) 

Processing deficit disorders are common for those affected with FASD. It is said they are “a 10 second kid in a 1 second world”. Giving time to think and process what is being said will assist in achieving success by giving them control over their behaviors. In this video the viewer is introduced to different scenarios and how to apply a “Stop & Think” plan. 

https://www.youtube.com/watch?v=nkoxwL9HNm4&feature=youtu.be 

RECOMMENDED READING

Fetal Alcohol Spectrum Disorders Trying Differently Rather Than Harder by Diane Malbin, M.S.W. 


Making Sense of the Madness An FASD Survival Guide by Jeff Noble and Tara Soucie 


The Mystery of Risk, Drugs, Alcohol, Pregnancy, and the Vulnerable Child by Ira J. Chasnoff, MD

WEBSITES

National Organization on Fetal Alcohol Syndrome (NOFAS)

https://www.nofas.org

NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness. NOFAS is a resource and helps supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities.


Proof Alliance

https://www.proofalliance.org/ 

Proof Alliance is the Minnesota affiliate of NOFAS and a leader in prevention, education and advocacy regarding FASD. Their website has an abundance of resources. 


National Institute on Alcohol Abuse and Alcoholism

https://www.niaaa.nih.gov/alcohol-health

FASD SUPPORT GROUPS

Online Parent Support Group hosted by the Double ARC Center for FASD!

This group consists of parents and caregivers from all over the country and internationally who join together to share and provide support. 

Evenings – second Tuesday of each month 

Daytime - fourth Monday of each month (10:30 – 11:30 EST)

Join their email list to receive monthly reminder emails - https://www.doublearc.org/parent-support-group/


Shifting the paradigm: towards a neuro-behavioral approach to FASD


https://www.facebook.com/groups/193857450738416


This is a Facebook support group that focuses on a neuro-behavioral (NB) approach to FASD. It stresses the importance of understanding FASD as a brain based disability and requires a shift in thinking about behavior from “won’t” to “can’t” resulting in developing a new understanding which fosters more appropriate supports and less frustration on the part of the caregiver and individuals with an FASD.

PHOTO GALLERY